BAV is the most prevalent congenital heart defect, but can go undetected for years - even into adulthood. Normal great vessel size I inderstand that my resistance training will likely be severely curtailed from this point forward, but severe restrictions on my endurance training will be a very difficult pill to swallow. Oh, plenty. Depending upon the size of the prosthetic valve, there is so e built-in obstruction to blood flow that is e aggregated during exercise. My exercise is limited to 30 minutes of moderate carido, with no weights. Is that far fetched? Down side: durabilitythe borrowed valve doesnt last forever; it will deteriorate and need re-replacement at some point. Also suggested taking low dose of beta-blockers although I have been told the effectiveness has not been proven. Frankly Im worrying quite a bit about thisand I feel like its causing additional chest pain and shoulder pain. A HR limit of 120 will be tough, I would guess. 2023 Baton Rouge Clinic. looking forward for healthy life without surgery any possibilities??? 2020 Update: Arnold Gets An Aortic Valve Re-Replacement! He is football player and he has training 5 times per week (for about 1,5 hours each). Thank you for your time. Dr. Creswell I feel like my HR takes longer to warm up and recovery after races is longer. Did the heart have to work harder to compensate? BAV is present at birth (congenital). If the conflicting opinions both come from cardiologists, you should ask them to confer with each other and arrive at some sort of consensus. Again, there are ACC/AHA guidelines for when operation is needed: Sometimes more than one indication for operation may be present, so there is the additional guideline for patients who need operation for aortic stenosis or regurgitation: I know from discussion with athletes over the past few years that there are differences of opinion among cardiologists and heart surgeons about these guidelines. Okay to wait? Maybe a genewho knows. Are we being foolish? Sbp. Although the vast majority in each group (97%) underwent TAVI via the transfemoral approach, bicuspid patients were less likely to receive conscious sedation (57% vs 62%) and more likely to be treated with the largest 29-mm valve size . A total of 25,556 newborns (51% male; mean age, 12 days) underwent echocardiography. (bicuspid aortic valve), singer Bret Michaels (atrial septal defect), and even 'Survivor' contestant Whitney Duncan (ASD). Surgeon Q&A: What is TAVR Valve-in-Valve? Unfortunately, I really cant point you to such studies. Adam Pick is a heart valve patient and author of The Patient's Guide To Heart Valve Surgery. OPTIMUM HEALTH, INC There is recent interest and experience with aortic valve repairinstead of replacementfor patients with BAV. Bicuspid aortic disease occurs when a defect is present in the valve that opens and shuts to allow blood flow from the heart through the aorta. I played competitive amateur football (soccer) on Saturday and Sunday from age 16. Im not a nurse or anyone who can help in any real way, she told PEOPLE, fighting back tears. This has caused me a great deal of anxiety because I feel like I am being told to act like an old man before my time. The only prudent course is to have periodic follow-up imaging to keep track of size/growth. I dont know about the relative effectiveness of various ARBs used for this purpose. Good to hear that youre doing well. I would really like to know if I can (or shouldnt) push myself as hard as I used to. Or its the result of the cumulative effect of the aortic and mitral valve leakage? First, a disclaimer.My practice is devoted to adult patients. "Until then, stay close.. Robin Williams - Aortic Valve Replacement & Mitral Valve Repair. 3. Perhaps you could print out the diagram, take it with you to the cardiologist, and ask him/her to circle the forms of exercise that would be safe in your case. That means it is a congenital heart defect. It is unclear however if there are cardio thoracic surgeons who perform minimally evasive repairs yet. She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. In the blog post, I talked about the circumstances when operation is needed.as well as when sports are generally safe. Mayo Clinic Q and A: What is a bicuspid aortic valve? No changes in regurgitation status (aortic regurgitation LVOT 19%); Im 32 years old and back in 09 I discovered I have a BAV. Its very helpful for people with heart problems. I had my BAV replaced in Feb. 2005 (porcine tissue) with a Dacron repair of the ascending aorta. Thus far shes had only minor bruising (shes 6ft and has a solid build). 4.2cm dilated aortic root Your sons cardiologist would seem to be in the best position to offer specific advice. The valve may also become stiff due to calcium deposits on the leaflets over time. No pulmonary hypertension I was physically examined by a medical board at new Delhi for the post of a chemist in geological servey of India but they declared me unfit as I have BAV . I applaud your efforts to search out information to help you decide on a course of action. I am 6ft 3 . You should discuss this possibility with your doctor(s). Those figures are funny to me because before I was doing three or four times more intense training beside my job (air force pilot). Your site has been helpful in provided a sense of peacebut an extra insight would be super encouraging. She is afraid, I can understand that. Open heart surgery is sometimes the best option, but it is not always the only option. Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. Anyway, I just wanted to say I found this article particularly informative. Individuals with BAV can develop progressive narrowing or obstruction of the valve, leaking of the valve, and . Will I need meds? I am wondering if you know anything about these drugs and how they can impact aortic growth? I used to run a lot. Thats about as specific as he got. Great article! The more common form of bicuspid aortic valve occurs in a valve with three cusps with . Just a short info for whomever may read, I searched for Tims name and I found this page: There is not much scientific evidence about what to expect. Barb. My aorta diameter is 4.0 cm and has increased by 0.8 cm (from 3.2 cm) in the past 5 years so the diameter is increasing rapidly. I had a ventricle septum defect patched up shortly after birth with no further follow up and a full recovery. Best to continue to work towards identifying cause(s) and getting any needed treatment. But, while doing my cardio stress test they discovered that I have a Bicuspid Aortic Valve. This might reasonably translate into some measurable improvement related to physical exercise. After the scans, ultrasounds, stress tests and TOE, I was diagnosed with BAV with no Stenosis, no Aortopathy and no evidence of Coarct and normal LV size and function. I cant imagine life without activity, but Im not fool to risk my life, not any more anyway :). I excercise 2-3 times a week, namely cardio and weight lifting. Can you advise and or recommend a specialist? Since he had to stop playing.. depression has set in. My cardiologist said that sometimes it remains stable and never grows anymore. The other theory is that there is a structural problem that leaves the aortic wall weak. Will surgery mean I can do more or less training? However, I absolutely love being competitive at running, and dont want to jeopardize that either. Since Im not close to good medical care, are their specific things that I will start to notice if my heart valve is causing a problem? I have been advised not to run any more marathons or half-marathons, but that I can still compete at up to 10km races. I cant imagine life without CrossFit, but I wont be able to continue will I? ), Your email address will not be published. I have ramped up my walking to 30 minutes, keeping my heart rate under 100 bpm. As I train triathlon I check my heart every year and there is small back flow (the same last 5 years). I had a scan done recently and they picked up a what they called a mild dilation of the aortic root at 47mm, ascending aorta 34mm, no other issues. And, if so, how did things go? The Ross procedure borrows your sons pulmonary valve and uses it to replace his aortic valve and aorta. Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window). Hi Larry, Replacement of the aortic valve with either a cryopreserved human homograft (the aortic valve from a human cadaver) or with the patients own pulmonary valve results in the least obstruction to blood flow. You already have a cardiologist looking after you. The surgery involved a replacement heart valve made from a transplanted tissue sourced from his pulmonic valve. no symptoms yet please help. My daughter (16 y/o) has a St Jude mechanical mitral valve (adult size valve even though she has had it for 7 years). 2. 7373 Perkins Rd Any guidelines? Susp. Thank you for best websit. Bicuspid Aortic Valve and Bicuspid Aortopathy Nomenclature and My question here is what is the damage I can cause to my heart, mechanical valve, if I keep my heart rate at hi intensity levels? Not only the degree of aortic regurgitation, but also the degree of enlargement of the nearby aorta, should be taken into consideration when settling on limits for exercise. Tachcardaia beetwen echo due that doctor couldent see clearly. March 15, 2023. Website designed by Gatorworks. Any words you have for us would be greatly appreciated. Latest Advances in the Treatment of Bicuspid Aortic Valve ANYTHING other than walking and golf? Many thanks. I have regular checks, 12 to 18 months, and until about 3 years ago was told that it was hard to tell that Id had a replacement valve, it now shows slight stiffening. Thanks for sharing your sons story with BAV. (Have you heard of the studies by Dr. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. Arnold Schwarzenegger Test Drives New Aortic Valve on Cleveland In fact, one young man died 5 years after operation (from other non related causes) and the study on his aorta tissue revealed that the device helped it to heal, presenting a healthy histology. The surgery was a full success, and the valve is closing really well now. No enlargement of aorta or any other problems. I went through the regiment of meds that are prescribed post AFIB. Im 32 years old and didnt expect at all that my aorta would dilate. Ive done the Philly a Marathon a coup,e times and know that its a terrific event. Before 2 years my aorta was 37mm . Star Jones. I know they really should get checked, and they will. ), What do you think? But for those WITH such problems, we do recommend curtailing either static or dynamic activities, or both. My daughter has played two years of varsity basketball already. The flaps are called cusps. Reply. I asked my surgeon and also the echocardiographist about my sports performance after full recovery, about 6 months after the surgery. Nwankwo Kanu (@papilokanu), the Olympic Gold Medalist (Soccer) suffered from Aortic Valve Defect. The thing that keeps me sane is that I can jump on a treadmill or go play basketball for a few hours and feel relatively normal. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. . Because it was just a cardiologist, not a sports cardiologist or physiotherapist. While I do not work out regularly, my job as a construction worker is somewhat strenuous. Ten years ago (2006), doctors said that there was a worsening of the BAV but still no need to have Aortic replacement. His whirlwind romance with Katherine Schwarzenegger has resulted in a rather large ring on her finger. If so, how quickly? Thank you so much. Also, due to a bout of DVT and elevated d-dimers Im on Warfarin for life. Cardiac outcomes in a contemporary population of adults with bicuspid aortic valve have not been systematically determined.Objective To determine the frequency and predictors of cardiac outcomes in a. However, this is not always the case. Good TAVI Results Seen in Bicuspid Aortic Stenosis: TVT Registry - TCTMD Arnold Schwarzenegger (The Governator) - Heart Valve Replacement. Finally some solid information about exercise and life post AVR, thank you very much for that. You have a good understanding of the issues. I didnt get it.". Thank you for taking the time to respond to everyones concern. I have a call in to his doctor but what do you think? Looking through the reader comments here at the blog and reflecting on the athlete inquiries Ive received, I thought Id cover some of the major issues. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. My surgeon says that the aneurism and bav go together. I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. I had multiple re-hospitalizations but seemed to recover. Kim Kardashian Doja Cat Iggy Azalea Anya Taylor-Joy Jamie Lee Curtis Natalie Portman Henry Cavill Millie Bobby Brown Tom Hiddleston Keanu Reeves. This has been true as long as I can remember in all sports I seem to have to put a lot more in to get the same out as others. . Baton Rouge, Louisiana 70808. But neither of these procedures are durable for the long-term. http://www.energystretch.com Im am in stres ?! host, 76, suffered a mild heart attack in 2012. Their experiences have been variable, and perhaps for a variety of reasons. She says now it is stable and I dont have to see her for 2 years. Those with symptoms are usually identified (BECAUSE of those symptoms) in the first year or two of life. I am a cycling Masters racer (Cat 2) for last 25 years . Bicuspid Aortic Valve: Role of Multiple Gene Variants in Influencing 2. When I had my valve replaced I was told that it would have a 20 year ish life but I think it should exceed that. I am a keen weightlifter, which is the basis of this post. Like I said, peoples experiences are all different. In fact, like most people, the 25-year-old had never heard the term before. They can occur separately or together. Ordinarily, race walking is considered to be in the same category of activity as long-distance running. But thats just anecdote. Save yourself.. Im not familiar with employment eligibility issues with BAV, even in this country. I had a Type A aortic dissection of the ascending aorta that extended into the descending aorta terminating near the femoral arteries. FAMILIAR FACES WITH CHD'S - Helping Hearts I met an old guy once after a run and he described me very well his running experience; he said when I accelerate, Im the only one to know. Great to hear that youre doing cross country running. No LA, RA, RV, chamber dilation I was disappointed [when I was diagnosed]. Now at 74, and after having AVR I am 10 weeks into the dont lift more than 10 pounds restriction. At approximately three months I became very ill and was diagnosed with prosthetic valve endocarditis. "I had many of them, but I thought, 'Nah.' Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. Im 52 years old and had surgery 2.5 years ago to repair an ascending aortic aneurysm (5.8 cm) and aortic tissue valve replacement. Pop Medicine > Celebrity Diagnosis . A CT scan made the diagnosis. Do you think the weights Im doing at the moment seem OK with those results ? I have severe aortic stenosis with no signs or symptoms. Bicuspid aortic valves can accumulate calcium deposits more easily than tricuspid aortic valves. Regarding the PEARS, the main concern is about the possibility that the aorta dissects even in a controlled measure (lets say 4.5cm). I am young with many years ahead, I dont want to accept this just yet when I know theyre is possibilty of repair. I am 46 years old today, 22x marathoner, 4x Ultra (50 miles) and 5x natural fitness competitor. I get the fact that lifting excessively can cause a spike in blood pressure, but only under certain conditions (i.e. Does the (unreplaced) aorta enlarge over time? You didnt mention your age, but obviously youd hope that whatever operation is performed.lasts a lifetime. How a Fitness Trainer Manages Bicuspid Aortic Valve Disease - Men's Health Thanks very much. Nonetheless, I think theres considerable confusion about this condition, in terms of diagnosis, implications for the athlete, and its treatment. Clinical significance of the bicuspid aortic valve | Heart Robbie Benson - Actor/Director - Bicuspid Aortic Valve. And during the years, this remained pretty stable. I cant wait to be back, completely rested with my heart recharged, my passion for the work ahead purposeful and my joy at lifes pleasures high," the statement continued. Frontiers | Transcatheter Aortic Valve Implantation in Sievers Type 0 Im not sure how you should best sort out the differing recommendations from your doctors. It was her death that prompted me to get checked out. As of Monday, my BP at the echo appointment read 115/66. The data regarding the progression of disease in athlete patients with BAVare limited. If reoperation is needed in your case, this would be something to discuss. Are there any things I can do now to help minimize my risk? Males are about twice as . Center for Bicuspid Aortic Valve Diseases | Penn Medicine Have you considered meeting with a heart surgeon to talk about the situation? I like to thank you in advance for reviewing my question and also, thank you for such a great blog. Your email address will not be published. So for that first month, we usually advise no driving, lifting, pulling, pushing, reaching, etc. The use of a less invasive transcatheter therapy in this . Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. For most athletes with only mild enlargement of the aorta and no problems with the aortic valve, there should be no activity restrictions. I'm new to this group, so I'll be rather short. Athletes with BAV and enlargement of the aorta to greater than 4.5 cm can participate safely only in low intensity sports (eg, golf, bowling, billiards). Dear Dr. Creswell, Im less certain about how BAV, coarctation, and history of VSD repair might impact ones current top-end performance. "I Googled 'womens' heart attack symptoms,' " her blog post continued. After the first month, patients are generally allowed to return gradually to all of their previous activities. Copyright 2021-2022 Baldwin Publishing, Inc.All rights reserved. Together, you should be able to settle on what sports activities will be safe based on those facts. I used to do quite some running 10 years ago (still at amateur level), I was doing lots of 10k and 20k and even I managed a marathon in 3h:26min (but at that time I didnt know about the BAV). It was a shock to the system to Hear that we need to consider a repair considering we didntt think this was happened until hey was an adult. That would include weightlifting. Hi Dr Creswell, He is on meds to slow it down. Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. While my surgeon said that I can do whatever normal healthy person would do my cardiologist gave me some restrictions basically not to raise my HR over 120. Doctors at the Frankel Cardiovascular Center's Comprehensive Aortic Program have . Push for earlier date? The heart has a difficult time coping with extra demands of exercise. It has served me well enabling me to live the vigorous, full, complete life you are all so familiar with. No information provided by Baldwin Publishing, Inc. in any article is a substitute for medical advice or treatment for any medical condition. Enjoy! My cardiologist Said to not lift heavy weights. I have 5 children, so I dont want to drop dead and leave my poor wife with them all to look after on her own. He is now 15. For athletes who return to sport after AVR and aortic replacement, its important to settle on whats safe with your doctor(s) ahead of time. It makes the heart work harder than it should. Ive a BAV with the fusion being between my right coronary and non-coronary leaflets. There are a lot of variables here, even from the short story youve shared. Hi Larry, Hi, Further to this most recent discussion point I was advised that isometric exercises, such as planks and other pilates type activities, as I understand them, are perfectly safe with BAV. I had an echo because of a scuba diving accident and was discovered to have a BAV (no PFO). Throughout the years he has played football and basketball. Sometimes it comes even when not exercising. Yesterday, for example, I spoke with a 71-year old patient who just had aortic valve replacement surgery due to this . Regarding activity restrictions, you would do best to rely on the advice of your sons doctor(s) who will be in the best position to know the relevant specifics. This site complies with the HONcode standard for trustworthy health information. Almost 15 years ago skilled surgeons replaced my aorta valve with a new replacement valve. I otherwise feel very healthy, other than (I think) normal slowing down that comes with age. Rhm, 43, tragically lost two of her family members to heart issues. If a large enough valve is implanted, there may be no noticeable impact on the ability of the heart to do extra work that comes with running (or any exercise). We also sign a school waiver every year. After 5 years of amateur competitive rowing, I had no problems keeping up with my peers whilst training at lower intensities. The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. This award-winning website has helped over 10 million people fight heart valve disease. Yes, as the patient grows, so will the aorta.and eventually you get to the traditional >40 mm cutoff where activity restrictions are advised. Heart Valve Disease Personal Stories | American Heart Association Guidelines suggest that athletes with BAV, normal size aorta, and no more than mild aortic regurgitation or stenosis can participate in all sports, without restriction.provided that they do not have an inherited connective tissue disorder like Marfan's's syndrome. What are my chances of being able to go back to marathon running after surgery? James Cameron checks in from Pandora with a status report. With aortic root 39mm. Could he be over-cautious?

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